Thinking good thoughts, but also muttering “shit! shit! shit!”

So we got the big call from the cardiologist today, and it wasn’t good news. Henry has the vascular ring thing, yes, and it looks like it’s compressing both his trachea and esophagus, so he’s most likely going to have to get surgery. The cardiac surgery team will be meeting Monday at OHSU to figure out if this is indeed the route they want to go.

Give your kid(s) big hugs and play with them LOTS today for me, okay?


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6 Responses to “Thinking good thoughts, but also muttering “shit! shit! shit!””

  1. corgimom Says:

    Here from RSG.
    I’m so sorry to hear about your sweet Henry! I will keep him in thoughts and prayers.
    I was also sorry to read your comment about the bullying that required moving schools.

    Hang in with everything and call on those around you who love you.

  2. Recovering Straight Girl Says:

    OHSU is so great, he’ll be well taken care of. Thank you for your comment today and for speaking up!

  3. momspeaks Says:

    You two are so sweet – thank you!

  4. Rebecca Says:

    Hi, I came upon your blog while searching Vascular Ring. I was wondering if your son ever had the corrective surgery. I had that surgery many years ago. It’s rare, so I’m interested in other people’s stories. I hope he is doing well.

  5. Matt E Says:

    hi all – this is a long shot but if anyone is still listening here i’m reaching out because we live in the Portland area and have learned that our 4 month old has a 22q11 abnormality – i was wondering if anyone would be willing to share any insight on the path forward from here? thanks so much!

    • Rebecca Says:

      Hi, I got an email alert on your comment. There’s a Facebook group called vascular ring support you could join. It’s a closed group so lots of dialogue. I think some have the 22q deletion diagnosis and could comment on the way forward.

      All the best,


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