Archive for the ‘Henry’ Category

Is there a pill for patience?

December 17, 2008

Since we’ve had three snow days this week (and with today’s blizzard, we’ll probably be out the rest of the week), all three kids are home. This isn’t much of an issue with Emma and James, since they find a lot of stuff to occupy themselves with: sledding, reading, painting, etc. However, with Henry, it’s a whole ‘nother ballgame.

Henry is our special needs kid, and as he gets older this becomes more prevalent. He’s falling further and further behind academically, socially, and emotionally, and this is something that we just have to deal with day by day. He is afraid of everything: horses, sledding, Polly Pockets (uh huh), you name it, he’s probably got some sort of sensory issue with it. Plus, he tends to scream whenever he’s frustrated, angry, or confused – which is most of the time. This makes for a pretty stressful time of it.

Dean and I pinch-hit with Henry. For the most part, we usually don’t get stressed with his behavior at the same time (unless he REALLY is on a roll), so if one of us is getting frustrated or burnt out, we can pass him off to the other one, or take the other one aside and remind them that we’ve got to be patient. This happened this morning, in fact.

I don’t know where I’m going with this, exactly. I guess that some days are harder than others. Henry has changed me profoundly in ways that I would never have imagined, and I’m grateful for that. It’s just that I never thought that the process would be so dang hard.

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Birthday boy

December 12, 2008

This Sunday, Henry turns eleven, and he has been reminding us of this fact for, oh, I don’t know, months? Yes, that sounds about right.

Birthday celebrations commence today. He’s requested that we bring Oreos and licorice for the class; last year, we brought donut holes which I personally was a big fan of because I got to eat all the leftovers. This year, not so much.

He’s also let us know that he is in charge on Sunday, and that means of the remote control, the meal schedule, and where he sits in the car (he has called shotgun). Henry obviously has very specific ideas on how this birthday is going to go!

He’s asked for Mom’s homemade cinnamon rolls for his birthday breakfast; all the kids usually ask for them and I’m happy to oblige, even though they take about three hours to make (!). Then he wants Papa Murphy’s “paparoni” pizza, and he wants to watch the Garfield movie. After that, he’s pretty much done – that’s the pinnacle of his birthday wishes. Simple and easy to fulfill. Hopefully, we’ll have some snow to add to his joy!


September 2, 2008

Classic AOTC poster 2Image by Doc_Brown via Flickr Well, we had a fantastic, FANTASTIC five days at the beach. I can’t even tell you how much I needed that vacation. I took hundreds of pictures and we made memories that will last a lifetime.

Got back today, with a leisurely afternoon of Star Wars watching planned (we do that when we get back home early during the day from a long break). As we were finishing up Attack of the Clones around 9 PM, I suddenly had a prickly feeling like “did I forget something?”

Lo and behold, I had forgotten just a teensy little detail. I had misread both today’s date AND the first day of school, and guess what? All those times I had told the kinder that they were starting school on Wednesday? Well, not so much. They’re starting school TOMORROW.

They weren’t too happy (understandably) at first, but they quickly came around to it, and were actually flipping out excited within about five minutes, THANK YOU GOD. So school supplies, lunches, snacks, and cute outfits are all ready.

I think we’re good. Even with a severe calendar malfunction.

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Tom and Jerry

August 21, 2008

Tom and JerryImage via Wikipedia Henry: How come the cat never wins? I want the cat to win sometimes.

Daddy: You mean on Tom and Jerry? The cat and the mouse?

Henry: Yeah. Why does the mouse always win?

(I’m sure I could spin this into something vaguely philosophic and life-altering, but I don’t feel like it. I just thought it was cute.)

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Kids say the darndest things

August 19, 2008

Henry on watching Spiderman (for the first time!) and seeing the kissing scene: “Oh, GOOD GRIEF.”

Emma: “Mommy, did you know that when Daddy kisses you his tongue goes in your mouth?”

James: “Did you know that the XBox is only $189 at GameStop?”

(That last one isn’t so funny.)

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They should totally put this in the flyer

August 15, 2008

So! One thing that they don’t tell you when your child is diagnosed as “special needs” is that there are some things that other kids – normal kids – will do, that your kid will NOT do. Obviously. But some of these things include some stuff that makes you want to throttle your kid. Therapeutically, of course. These activities include:

– Going down the big bouncy slide filled with water in your back yard that is basically made of awesome, yet is feared beyond all reason because it “makes me pee in the middle of the night.” What. The. Frickity. Frack.

– Going to the park because you have to walk up a hill, so you scream like you are William Wallace being disembowled in “Braveheart”.

– Eating something like pork loin and salad because it’s not made of solid sugar and SWEET BABY JEBUS we’ve got to alert the authorities, because obviously, that counts for abuse.

Little things like that. That’s why, when I see moms frazzled with their busy ten year old boys who are darting all over the place like squirrels on crack, I am actually ENVIOUS. Everyone has their own issues, of course, but I would love to see Henry run around and play and not scream about pine needles or the air being too air-y or some such other nonsencial thing that makes sense only to him and drives me to CrazyTown.

The essentials

August 5, 2008

When running away from home, these are the things you should pack.

  • Four “Bone” comic books.
  • One Hot Wheels treasury from the library.
  • Two pairs of pajama pants.
  • One pair of socks.
  • One pair of (hopefully) clean underpants.

All of these things fit quite nicely in the striped top sheet of your bed, which can be slung over your shoulder, hobo-style. Be sure to notify everyone MULTIPLE TIMES that you are running away, otherwise it’s not for real.

(This has been a public service announcement from Henry, who has temporarily put off running away in order to play with his giant Tonka fire truck. Rest assured that he is still thinking about running away, however – you’re not out of the woods yet. )

An IEP meeting complete with stars and fairydust

May 8, 2008

Today was the semi-annual IEP meeting for Henry and his teachers. IEP stands for Individualized Education Plan, but should really stand for Incredibly Excrutiatingly Long Planning Meeting. So I guess it would be….IELPM? Hmmm.

Anyway, this meeting was actually quite enjoyable, which for those of you out there with kids and an IEP you know how odd that statement sounds. But I’m serious – it was kinda fun. Henry is on track with his plan, and is actually testing right on par for most things, which both thrilled and surprised me. He is just trucking right along, the sweet little stinkhead.

One of the things we looked at was fourth grade. He’s going to pretty much have the same level of support he has now, but he will be allowed to – get this – have an mp3 player for testing. Here’s the deal: I shared with his teacher a couple weeks ago that he concentrates much better with music. So! Now I get to make a mixtape for my ten year old. I’m thinking some Sabbath, a wee bit of NIN, maybe some Ozzy? Oh, I kid, I kid. He’s a John Denver kind of guy.

Bottom line, the meeting went good, Henry is good, and all is well in the world. I even did a little celebratory jig, which was kind of awkward and embarrassing since I realized two seconds after I did such jig that my fly? It was wiiiiide open. Yeah. Way to poke a hole in that bubble of happiness, universe!

Thinking good thoughts, but also muttering "shit! shit! shit!"

February 22, 2008

So we got the big call from the cardiologist today, and it wasn’t good news. Henry has the vascular ring thing, yes, and it looks like it’s compressing both his trachea and esophagus, so he’s most likely going to have to get surgery. The cardiac surgery team will be meeting Monday at OHSU to figure out if this is indeed the route they want to go.

Give your kid(s) big hugs and play with them LOTS today for me, okay?

Thinking good thoughts, but also muttering “shit! shit! shit!”

February 22, 2008

So we got the big call from the cardiologist today, and it wasn’t good news. Henry has the vascular ring thing, yes, and it looks like it’s compressing both his trachea and esophagus, so he’s most likely going to have to get surgery. The cardiac surgery team will be meeting Monday at OHSU to figure out if this is indeed the route they want to go.

Give your kid(s) big hugs and play with them LOTS today for me, okay?